Choose Request Type:(Required)Please Make a Selection…JH-ADDs Atlas Access Request (Cohort Discovery Only)JH-ADDs Row-Level Data Access Request (Invite Only)JH-ADDs New Data Request (Coming Soon)JHED ID:(Required)IMPORTANT: Please use the proper format of [email protected].Email(Required) Agreement(Required) Agreement to not attempt to re-identify any data in this training dataset. I agree to: • Not re-distribute this data in any form • Use this data only on the secure PMAP data platform • Recognize that while this data is de-identified, it is patient data and should be managed and protected respectfully I attest to the above × NOTE: Atlas requires SAFE Desktop. Request SAFE Desktop access HERE NO LONGER ACCEPTING NEW REQUESTSThe JH-ADDs Pilot study is currently at capacity.Attestation Step 1 of 14(Required)No attempt will be made to re-identify patients. I agreeAttestation Step 2 of 14(Required)The data will not be redistributed, including posting on Journal sites that request original data. I agreeAttestation Step 3 of 14(Required)Projects that involve development of a tool, device, or other intellectual property that requires FDA or other regulatory approval will not use this data access mechanism, but submit an independent JHU IRB application. I agreeAttestation Step 4 of 14(Required)Data will be analyzed on PMAP or other computing environments approved for HIPAA limited datasets. I agreeAttestation Step 5 of 14(Required)I confirm that I will respond to an annual survey outlining which computing equipment we have used for analyses and summarizing findings. I agreeAttestation Step 6 of 14(Required)Report public presentations, posters, and publications in the anniversary survey annually I agreeAttestation Step 7 of 14(Required)Data linkage, if any, will be restricted to datasets that do not materially increase the risk of re-identification (Classes 3 or 4 in Data Linkage Class Descriptions uploaded to Section 20). I agreeAttestation Step 8 of 14(Required)Should inadvertent re-identification be discovered, investigators will immediately notify the PI of the IRB approved registry and the PI will formally report to the IRB, and inform the OMOP provisioning team. I agreeAttestation Step 9 of 14(Required)Recognize that while this data is de-identified, it is patient data and should be managed and protected respectfully and responsibly. I agreeAttestation Step 10 of 14(Required)No data accessed with this mechanism will be shared with any person, party, or organization outside of JHU. Project that require any kind of data sharing outside of JHU should submit an independent JHU IRB application. I agreeAttestation Step 11 of 14(Required)Agree that the investigator team will acknowledge the “Johns Hopkins De-identified Patient Repository” in any and all presentations, papers, or other publications. I agreeAttestation Step 12 of 14(Required)Ensure that all users of the data are under the fidciary responsibilty of the requesting investigator and documented. I agreeAttestation Step 13 of 14(Required)Ensure that all users of the data have completed IRB specified human subject research training. I agreeAttestation Step 14 of 14(Required)Ensure that this data is deleted when all analyses are completed (the dataset can be recreated in future for reproducibility purposes). I agreeName(Required) First Primary Appointment(Required)Your JHED ID(Required)Your Email Address(Required) Project Title(Required)Project Type(Required) Research Education Study Description(Required)Cohort Definition(Required)Please enter your cohort definition. If you have a Cohort Expression from Atlas, please enter it here.
JH-ADDs Request